Updated plans for a book ‘Living better with dementia’

I personally think I’ve made a good start in describing the rationale in the English policy for ‘Living well with dementia‘.

On the other hand, from talking with various people in person, and from conversations I’ve had in the social media, I feel there are some chapters I need to write in a follow-up book.

I’d be grateful if you could consider the following thoughts, and perhaps advise me accordingly?

Chapter 1 Introduction


Chapter 2 Specialist groups living well with dementia

e.g. LBGT, travellers, racial groups, persons with learning difficulties


Chapter 3 Young onset dementia and living well

This chapter is likely to include a focused look on the changing needs of the early onset dementia/young onset group. It is also likely to include the drive for genetic risk factors identification and whether this is likely to help policy or not.

Current state of play in the genetics of the ‘tauopathies’ in dementia of the Alzheimer type and frontotemporal dementia. Personalised medicine, genomics and data sharing


Chapter 4 Delirium and dementia: are they living well together in policy?

There is currently a slight confusion how cases are found in secondary care in delirium which inform on case finding in dementia.

An analysis will be presented on a relative lack of interest in assessing an effect of timely interventions to promote living well with dementia, and how this has unwittingly distorted the screening debate for dementia based upon the Wilson and Jungner (1967) criteria.


Chapter 5 Who cares about living well with dementia?

Shared purpose in dementia person-centred care.

Relationship-centred care

Institutional and inclusive approaches to care.

Carers and living well with dementia – tip of an iceberg?

Carers and unpaid family caregivers

The anticipated demographics of unpaid family caregivers

How to assess the ‘quality’ of a care home

‘Triangle of care’ and RCN guidelines

Carers’ Trust

Kate Swaffer’s “prescribed disengagement model”

The rôle of dementia specialist nurses, including Admiral Nurses



Chapter 6 Framing the narrative for living well with dementia

The effect of language in the media on living better with dementia

Cultural metaphors: war, tides and fights

Stigma and discrimination

Questionnaire study of perception and identity: the #G8dementia summit

Medicalisation, Alzheimerisation and living well with dementia


Chapter 7 Can living well with dementia with personal budgets work?

Cascading cultural change: “dementia champions”

Personal budgets and living well with dementia

History of this policy theme

Implications for choice and control

Implications for advocacy


Chapter 8 Nutrition and living well with dementia

Nutrition champions

Difference between audit and research

Royal College of Psychiatrists Dementia Audit

“Food First”


Chapter 9 Art and creativity in living well with dementia

This topic was inadequately addressed in my first book ‘Living well with dementia’, I feel


Chapter 10 Living well with dementia with sporting memories

“Memory boxes”

The cognitive neurology of “sporting memories” and living well with dementia

The application of neuroscience to understanding reminiscence in dementia

There is a temptation not to take sporting memories and reminiscence techniques not very seriously, as they are currently poor understood.

This chapter will review the evolution of the “sporting memories” initiatives, and consider how they might have a powerful neuroscientific substrate in memory systems after all.


Chapter 11 Incontinence and living well with dementia

Stress and urge incontinence.

Incontinence in different types of dementia.

Incontinence and medications.

Non-surgical approaches for incontinence.


Chapter 12 Thinking globally about living well with dementia

Examples of various initiatives domestically and internationally.


Chapter 13 Why does housing matter for living well with dementia?

Design of housing and adaptations

The structure and function of the English housing sector. The ‘care coordinator’


Chapter 14 Is there any need to track living well with dementia?

Care co-ordinators.

Safety. Human rights, liberty 
and the law. “Smart technology”.


Chapter 15 Networks, innovation and living well with dementia

Networks and innovation.

The importance of collaboration and innovation in securing competitive advantage

Social media and mitigation against loneliness.

Case study: life story networks.


Chapter 16 Promoting leadership

Leadership in person-centred care

The involvement of “people” in the JRF ‘four cornerstones’ model.

Corporate social responsibility, marketing and strategy.

The history of the Japanese befriending policy and implications for England.

RSA Social Brain and collective decision making

Some real-life experiences.


Chapter 17 Seeing the whole person in living well with dementia

Going from a philosophy of ‘risk mitigation’ to ‘living well’

Whole person care and living better with dementia.

Oldham Commission report on “whole person care”.

Philosophy of integrated care.

Frailty and ‘front door’ approaches

Principles of “Transforming primary care”.


Chapter 18 Conclusion

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