I will be presenting two posters on attitudes amongst the general public towards the ‘G8 dementia’ event as it was then.
I was aghast that out of 75 web articles that the phrase “Living well with dementia” wasn’t used once.
There was a huge bias towards the medical model of dementia. Respondents overwhelmingly felt that the major beneficiaries of that event were large charities, politicians and Pharma, and the people who benefited least were the actual persons living with dementia and caregivers.
I am honoured to give one of the oral presentations.
Information asymmetry between insurance provider and person is a big source of problems. I will showing preliminary data that the two phenomena “moral hazard” and “adverse selection” are likely to be demonstrated in attitudes of people who had received a genetic diagnosis of dementia.
However, I will be raising awareness of the danger of a policy based purely on genetic risk and private insurance; without safeguards against genetic discrimination, such a policy would be likely massively to disadvantage individuals with a higher family-based risk of dementia.
I am hugely grateful to my Twitter followers for taking part in my online surveys.
I am, finally, hugely grateful to the individuals living with dementia and caregivers, as well as other members of the public, who continue to drive the work that I do in dementia.
“Living well with dementia” is a major aspect of achieving individualized independence for those of us with various manifestations of dementia. — George Watters, Independent Living Advocate.